My name is Jennifer an I’m 31yrs of age. I started to have problems after the birth of my 1st child . Crazy right . It amazes me the many different things the dr’s thought .. It was from my epdural , I had lose si joints , r severe trama to my back .. I had never had any problems before an suddenly my life changed .. At first I was told I dislocated my si joint lifting up on my 4 month ol daughter then for a which after I thought that the pain was from that incident . For the first 2 yrs I saw my primary care dr that felt test were not needed an had me go in 1 r sometimes 2 a month . After much frustration I wanted answers I was in pain . One day it it hit hard an I was more comfortable crawling on the floor like an animal than walking . I decided to switch dr’s .. He listened to me an after a few appt. He decided I needed to see an orthopedic dr . So I did an he sent me for a MRI After my first visit . All they found was a bulged disc , it’s from the pregnancy he said an then he sent me to a pain management dr to do an epadural . So I went at this point I wanted relief an to be pain free .. I had my first an it help with the muscle spasms I had but still not relief in the si joints so he told me I had lose si joints from the pregnancy . After a yr of numerous injections into my si I told him they were not helping an the meds were not as effective any more …. He told me I was to young to have these kind of problems an felt my next option was to fuse mu back an freeze the nerves .. Something told me things were not right an I still did not have anexplanation of what was really going on . At the end of that visit he had slapped his but an told me to put more weight on an to eat cookies cause it had worked for him .. He said I had no butt an that cause most of my symptoms . Nice I know . Well I followed my instinct an had made an appt with another dr for an 2nd opinion. I made the dr treating me at the time aware of my dission an he said let home know what he says .. As I called my husband crying after that last appt telling him what he had said ti me he told me to keep my appt with the new dr an then see if he will take me on as a patient before leaving the other . So I did .. The next day r 2 after my appt with the new dr I had a registered letter in the mail from the dr that had been treating me the last yr saying I was dr hopping for pain meds an that he was no longer willing treat me . I was so upset for being called something like that . But the new an now my current dr never thought anything of it an still proceeded to take me on as a paticent . I had gone back to my Gp dr so he could order some tests . At the time is was my Gp that had to do most of the foot work I guess u could say for things to get done . An he sent me for a bone scan . Well it came back positive. So what did that mean another dr to see .. A rummy as I like to call them dr… She ran sone test an the one she was sure would come back positive did !! So she tell me j have AS .. all I can remember is breaking down
Crying in her office as she had given me Info on what she thought I had while I waited for my test results to come back .. As I struggled with everyday life an chasing a active 3 yr ol an a husband that works 14 an 14 I felt as if so much was taken from me the day she told me I had AS . she begin to put me on humara right away which I stayed on for 4 to 5 months . As the rumors went that my husband beat me cause I was so black an blue to the point I would not leave my house an hide my face as the meds had abscessed my face from one end to another I grew more depressed an thought my husband an child did not deserve to carry my burden an be better off if I was not with them as I dream on my worst days if pain sone freak accident happening takeing my misery away from them … My rummy dr decided I was not cut out for TNF blocker an put me on another med . Help a little but methotrexate was outta the question as I want to have another child . After almost over a yr of trying to get pregnant an giving up I find out I am . At that point I was terrified cause I have gotten worse over that time an had been on lortab for almost 4 yrs for pain .. As I was excited my husband this time seemed with drawn form the whole thing .. An that Was only the beginning of a long an painful pregnancy . I would wake uo an feel like some one took a bat to my ribs an I was up front with my ob on the 1st visit about my condition an pain . Cause I was on them for so long an having so much pain can cause an spontaneous abortion she kept me on my pain meds . While my first pregnancy was a walk in the park this time was not an I thought it was a punishment in some odd way .. Anything that was not normal happened .. I never had one day that I enjoyed r was happy to be pregnant after the pain started to intensify 3 months along . I begin to think it was a mistake . It forced me to make a decision that I truly regret an have my tubes tied as my husband knew with 2 kids there was no way I could handle another pregnancy .. Now my baby is a happy healthy 7 month ol but I still have trouble keeping uo with her an my 6 yr ol . As my husband works 28 & 28 in maylaysa right now I am alone with little help until he comes home . Just last week the baby got up an she was not easily comforted I went to pick her up an could not . It took several attempts till I finally was able to lift her an put her in bed with me 2 hrs latter I had to get my oldest dressed an ready for school . I cried most of that day cause I felt so helpless an wondered will it get better r just keep getting worse as it has every yr since I found out I had AS . no one under stand what I go through an how hard everyday things can be an how I can be ok one min an the next wanna curl up into a ball an cry . I’m always told I’m to young to have these kind of back problems an have only met one other person with AS . an I had relief someone knew what I was going through . Some days i still feel like I a burden to my husband an kids an think there better off with out me. Especially my husband . He married a normal ready to go always up for anything to an no I’m hurting r I can’t r just to tired wife .. Until 2 days ago I never knew ther were so many out there that understand my pain an what life is like with AS . I hope they will find a cure r something that will help all of us live an take back our lives an enjoy everyday pain free!!!!!